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Rare diseases are under-diagnosed. By wearing this shirt you'll be helping me promote rare disease awareness. I want to share the message that rare diseases are real and everywhere. Cowden Syndrome is a genetic cancer syndrome and my PTEN gene is mutated. When I tweet I use the hashtag #PTEN.
My name is Heather and I am living with 2 rare diseases: Cowden Syndrome and Lhermitte-duclos Disease. I started my blog "hopeforheather" the day after I was diagnosed with the 2 brain tumors. I am unable to work and can really use your support. <b>I hope to be a strength to others living with rare disease.</b>
<div>100% Printed in the U.S.A - Ship Worldwide<br> </div><div></div><div>Guaranteed safe and secure checkout via : <b>PayPal | VISA | MASTERCARD </b> <div> <br><b>***HOW TO ORDER? </b><br>1. Select style and color <br>2. Click " <b>BUY IT NOW</b> " <br>3. Select size and quantity <br>4. Enter shipping and billing information <br>5. Done! Simple as that! <br><br>Multiple styles available, but get yours now before its too late. We ship worldwide</div> </div>
This year for Rare Disease Day 2017 the theme is RESEARCH, so let's raise some awesome awareness not only for FD/MAS, but for ALL rare diseases!! <div><br></div>
As somebody with Fabry Disease, I know what it feels like to be rare. Let's show the world we're proud of who we are. Be bold and wear rare!